Member of the General Assembly:
Centre for Childhood Cancer Survivor Studies
School of Health and Population Sciences
Public Health Building
University of Birmingham
The Centre for Childhood Cancer Survivor Studies was established in 1998 by Professor Mike Hawkins to carry out the British Childhood Cancer Survivor Study (BCCSS) at the University of Birmingham. It is located in the Department of Public Health, Epidemiology and Biostatistics in the School of Health and Population Sciences.
The BCCSS quantifies the risks of adverse health and social outcomes experienced by the national population of survivors of childhood cancer. Of particular concern are risks and causes of subsequent primary neoplasms, cardiovascular, pulmonary, renal, hepatic and endocrine conditions; also comparisons of educational attainment and employment status with that expected from the general population. Past studies were based on 18000 individuals diagnosed with childhood cancer in Britain. Investigations used linkages to the national death and cancer registries and 10500 postal questionnaires returned by adult survivors. Future studies will be based on 34000 individuals with linkage to Hospital Episode Statistics for England (and equivalent in Wales and Scotland).
The Teenage and Young Adult Cancer Survivor Study is on-going and comprises 170000 individuals diagnosed with cancer aged 15 to 39 years in England and Wales who survived at least 5 years. Observed and expected numbers of specific causes of death and subsequent primary cancers will be obtained through linkage to the national death and cancer registries. Observed and expected numbers of episodes of non-cancer morbidity will be obtained through linkage to HES (and equivalent in Wales) and the Myocardial Ischaemia National Audit Project (MINAP).