All posts by Elise

Paediatric Oncology for Cancer Registries Training course

IARC, Lyon, France

25–29 November 2013

Increasingly, there is a need to use clinically relevant information in population-based research. This development increases the usefulness of both clinical and population-based resources and provides the basis for making appropriate policy decisions and contributing to etiological and clinical research. The collection of additional data items with clinical relevance in population-based cancer registries requires well-defined standards and additional resources, in terms of both personnel and expertise.
With the aim of building expertise, Paediatric Oncology for Cancer Registries is a unique course, organized by the International Agency for Research on Cancer (IARC) in the framework of the European Network for Cancer Research in Children and Adolescents (ENCCA), a Network of Excellence funded by the European Commission in FP7.

Aims of the course

The course aims to strengthen knowledge of epidemiology, biology, clinical practice, clinical research, survivorship, and ethical issues in paediatric oncology. The course will provide insight into clinical practice and develop understanding of linkage of clinical data with population-based cancer registries. Upon completion of the course, the participants will be able to initiate the collection of highly specific data items, understand their meaning, and apply the relevant quality control to these data, thus actively contributing to the relevant international studies.

Target audience

The course is designed for the staff of the European Network of Cancer Registries (ENCR) member registries, including research directors, epidemiologists, physicians, pathologists, statisticians, and registrars. A basic knowledge of cancer registration techniques, data collection, classification, and coding is assumed. Fluency in English is also required. Up to 40 participants will be admitted to the course.
There is no registration fee, but participants are expected to cover their own travel and subsistence expenses. Interested candidates should submit an application form (available online) before 28 June 2013. The selected candidates will be informed by 31 July 2013.

Further information

IARC, 150 cours Albert Thomas, 69372 Lyon Cedex 08, France


Download leaflet for the course here (pdf)

ITCC-ENCCA Training course: Rational Drug Development in Children with Cancer

The ITCC-ENCCA Training course on “Rational drug development in children with cancer” will take place next 12-14 September, 2012 at the Università Cattolica del Sacro Cuore, Rome, Italy.

This course is a clinically-oriented educational programme designed for doctors and research nurses working in ITCC centres. It is open also to interested applicants from non-ITCC European institutions and Pharmaceutical industries.

It includes a pre-meeting, e-learning and web based educational material, together with selected recent publications that represent the basic information for course attendance. The course is a unique opportunity for professionals involved in clinical and translational research to learn the essentials of early drug development in paediatric oncology from the experts in this highly-specialised field.

A maximum of 50 participants will be accepted.



Childhood Cancer Survivors take part in Bike Ride through Italian Countryside

On the occasion of a professional bike race involving the top cyclists in Italy, ‘Granfondo fizik’, a special race for paediatric survivors took place on 06 May 2012 in the beautiful Marostica, an hour away from Venice. As part of the dissemination activities of the EU-funded Seventh Framework Programme (FP7) project PanCareSurFup (PanCare Childhood and Adolescent Cancer Survivor Care and Follow-Up Studies –, ‘The Race of Brave Bikers’ saw the participation of 30 young cancer survivors from across Europe, on a special 10km route and even longer for several participants. The event has been led by project dissemination leader Prof. Momcilo Jankovic and sponsorship was led by NEAR (an Italian company dealing with corporate social responsibility –   and Fi’zi:k (an Italian company specialised in suppliers for professional cyclists –


The event aimed to raise awareness of the increasing number of paediatric cancer survivors in Europe, due to successful cure rates. The race involved several young people who have been able to overcome cancer and, today, live a normal life. The race demonstrated not only their immense courage, but also on the importance of optimum quality-of-life for the many survivors, and the need to promote research studies into late effects of the complex paediatric cancer treatment.


On the previous day, 05 May, a roundtable was organised, with experts and doctors from leading European hospitals explaining their role in the project to several stakeholders including survivors, to promote the message that every European childhood cancer survivor deserves access to the best possible care and better long-term health.


More information:

PanCare SurFup project

Race of the Brave Bikers (in Italian)

More photos

9th PanCare Meeting Bucharest, Romania

10 – 13 May 2012

Hotel Pullman Bucharest
World Trade Center

Specialists from across Europe will have a dialogue in a multidisciplinary setting about long-term care plans for survivors of childhood and adolescent cancer. For the first time, Eastern European priorities will be firmly on the agenda and will be represented by a maximum turnout of specialists from Romania and its neighbouring countries.


10 May PanCare open business meeting
11 May PanCare Open Session
– Inviting Eastern European delegates to the dialogue
12 May Parallel sessions
– PanCareSurFup
– SROHP meeting
13 May SROHP meeting
– The annual gathering of the Romanian National Society of Paediatric Hemato-Oncology

Invitation and agenda for PanCare and SROHP meetings in Bucharest May 10-13 20124 >>

Report of the first Irish Conference on Survivorship after Cancer during Childhood and Adolescence

This conference was held on 26 November, 2011 in the Croke Park Conference Centre, Dublin from 10 am to 4 pm. It was organised by the Boyne Research Institute, Drogheda, Ireland, in association with PanCareSurFup‘s Work Package 7 (WP7), and the Irish Cancer Society. Co-sponsoring organisations were the Children‘s Medical & Research Foundation of Our Lady‘s Children‘s Hospital, Crumlin, Dublin, Novartis Ireland and Bristol-Myers Squibb Ireland.
The conference targeted survivors and their families and also, specialists, general practitioners, nurses and other health professionals. Registration was free. A total of 111 guests attended; about 70% were survivors and family members.
Speakers were primarily drawn from PanCareSurFup and included Lars Hjorth, Mike Hawkins, Momcilo Jankovic, Elvira van Dalen and Gill Levitt. Other speakers included Alex Brownsdon, Harry Comber, director of the Irish Cancer Registry, Michael Capra, paediatric oncologist at Our Lady‘s Children‘s Hospital, Crumlin, John McCormack, CEO of the Irish Cancer Society, and representatives from CanTeen Ireland, Barretstown Castle and ICCCPO (Gerlind Bode).
The keynote speaker was Irish MEP Nessa Childers, who reminded survivors not to even think about smoking, and to take control of their health.
A survey of those who attended showed a high level of satisfaction with the conference, the speakers and the arrangements. Most rated all elements on the survey as „Excellent“. BRI staff are currently analysing the data from the surveys. A final report will be placed on the conference website – The website carries the full programme and the presentations from each speaker . Numerous photos from the event can be viewed on, as well as on the conference website.

By Julie Byrne

Nov. 26, 2011 – Irish Conference on Survivorship after Cancer during Childhood and Adolescence

The Boyne Research Institute, Drogheda, Ireland in association with the Irish Cancer Society will host the first Irish Conference on Survivorship after Cancer during Childhood and Adolescence.

This 1-day conference will take place in the Croke Park Conference Centre, Dublin, on Saturday, November 26th, 2011.

Registration opens on 1 September, 2011. For more information visit