Alojz Peterle, Politician opening
Gilles Vassal, President of SIOPE 3:13
Martin Schrappe, President-elect of SIOPE 3:54
Irina Ban, Parent of leukemia survivor 20:00
Ruth Ladenstein, leader of ENCCA and ExPO-r-Net 28:51
Patricia Blank, Parent of survivor, on innovations and trials in Europe 41:00
Pamela Kearns Pediatric oncologist 54:00
Jaap den Hartogh on childhood cancer survivorship 1h05 Riccardo Haupt Survivorship and Survivorship passport 1h12
Round table discussions 1h22
The 17th ECCO – 38th ESMO – 32nd ESTRO European Cancer Congress, Amsterdam, 27 September – 1 October 2013, will once again combine the united efforts of all partner organisations to continue positioning multidisciplinarity as the way forward to best improve the prevention, diagnosis, treatment and care of cancer patients. The recognised multidisciplinary setting of the Congress will provide ideal surroundings for participants to leverage knowledge, promote education and build awareness about oncology – placing the patient at the heart of all our efforts and discussions.
Increasingly, there is a need to use clinically relevant information in population-based research. This development increases the usefulness of both clinical and population-based resources and provides the basis for making appropriate policy decisions and contributing to etiological and clinical research. The collection of additional data items with clinical relevance in population-based cancer registries requires well-defined standards and additional resources, in terms of both personnel and expertise.
With the aim of building expertise, Paediatric Oncology for Cancer Registries is a unique course, organized by the International Agency for Research on Cancer (IARC) in the framework of the European Network for Cancer Research in Children and Adolescents (ENCCA), a Network of Excellence funded by the European Commission in FP7.
Aims of the course
The course aims to strengthen knowledge of epidemiology, biology, clinical practice, clinical research, survivorship, and ethical issues in paediatric oncology. The course will provide insight into clinical practice and develop understanding of linkage of clinical data with population-based cancer registries. Upon completion of the course, the participants will be able to initiate the collection of highly specific data items, understand their meaning, and apply the relevant quality control to these data, thus actively contributing to the relevant international studies.
The course is designed for the staff of the European Network of Cancer Registries (ENCR) member registries, including research directors, epidemiologists, physicians, pathologists, statisticians, and registrars. A basic knowledge of cancer registration techniques, data collection, classification, and coding is assumed. Fluency in English is also required. Up to 40 participants will be admitted to the course.
There is no registration fee, but participants are expected to cover their own travel and subsistence expenses. Interested candidates should submit an application form (available online) before 28 June 2013. The selected candidates will be informed by 31 July 2013.
The ITCC-ENCCA Training course on “Rational drug development in children with cancer” will take place next 12-14 September, 2012 at the Università Cattolica del Sacro Cuore, Rome, Italy.
This course is a clinically-oriented educational programme designed for doctors and research nurses working in ITCC centres. It is open also to interested applicants from non-ITCC European institutions and Pharmaceutical industries.
It includes a pre-meeting, e-learning and web based educational material, together with selected recent publications that represent the basic information for course attendance. The course is a unique opportunity for professionals involved in clinical and translational research to learn the essentials of early drug development in paediatric oncology from the experts in this highly-specialised field.
On the occasion of a professional bike race involving the top cyclists in Italy, ‘Granfondo fizik’, a special race for paediatric survivors took place on 06 May 2012 in the beautiful Marostica, an hour away from Venice. As part of the dissemination activities of the EU-funded Seventh Framework Programme (FP7) project PanCareSurFup (PanCare Childhood and Adolescent Cancer Survivor Care and Follow-Up Studies – www.pancaresurfup.eu), ‘The Race of Brave Bikers’ saw the participation of 30 young cancer survivors from across Europe, on a special 10km route and even longer for several participants. The event has been led by project dissemination leader Prof. Momcilo Jankovic and sponsorship was led by NEAR (an Italian company dealing with corporate social responsibility – www.neargroup.it) and Fi’zi:k (an Italian company specialised in suppliers for professional cyclists – http://www.fizik.it/).
The event aimed to raise awareness of the increasing number of paediatric cancer survivors in Europe, due to successful cure rates. The race involved several young people who have been able to overcome cancer and, today, live a normal life. The race demonstrated not only their immense courage, but also on the importance of optimum quality-of-life for the many survivors, and the need to promote research studies into late effects of the complex paediatric cancer treatment.
On the previous day, 05 May, a roundtable was organised, with experts and doctors from leading European hospitals explaining their role in the project to several stakeholders including survivors, to promote the message that every European childhood cancer survivor deserves access to the best possible care and better long-term health.