There are almost 400,000 survivors of childhood cancer in the United States and most are expected to live until adulthood. But toxic treatment comes with a price, including serious medical problems for most patients years down the road. Now the most comprehensive study of its kind has found that many problems go undetected.
At age 7, Marnie Golden was diagnosed with Non-Hodgkins lymphoma.
Listen to the interview and read article here: http://www.cbsnews.com/8301-18563_162-57589497/for-child-cancer-survivors-tr
On the occasion of a professional bike race involving the top cyclists in Italy, ‘Granfondo fizik’, a special race for paediatric survivors took place on 06 May 2012 in the beautiful Marostica, an hour away from Venice. As part of the dissemination activities of the EU-funded Seventh Framework Programme (FP7) project PanCareSurFup (PanCare Childhood and Adolescent Cancer Survivor Care and Follow-Up Studies – www.pancaresurfup.eu), ‘The Race of Brave Bikers’ saw the participation of 30 young cancer survivors from across Europe, on a special 10km route and even longer for several participants. The event has been led by project dissemination leader Prof. Momcilo Jankovic and sponsorship was led by NEAR (an Italian company dealing with corporate social responsibility – www.neargroup.it) and Fi’zi:k (an Italian company specialised in suppliers for professional cyclists – http://www.fizik.it/).
The event aimed to raise awareness of the increasing number of paediatric cancer survivors in Europe, due to successful cure rates. The race involved several young people who have been able to overcome cancer and, today, live a normal life. The race demonstrated not only their immense courage, but also on the importance of optimum quality-of-life for the many survivors, and the need to promote research studies into late effects of the complex paediatric cancer treatment.
On the previous day, 05 May, a roundtable was organised, with experts and doctors from leading European hospitals explaining their role in the project to several stakeholders including survivors, to promote the message that every European childhood cancer survivor deserves access to the best possible care and better long-term health.
PanCare SurFup project
Race of the Brave Bikers (in Italian)
Take the opportunity to go to Italy the 5-6 may 2012!
The PanCareSurFup Italian Cycling Event is taking place here in Bassano del Grappa – contact us if interested in taking part!
Read more here:
This conference was held on 26 November, 2011 in the Croke Park Conference Centre, Dublin from 10 am to 4 pm. It was organised by the Boyne Research Institute, Drogheda, Ireland, in association with PanCareSurFup‘s Work Package 7 (WP7), and the Irish Cancer Society. Co-sponsoring organisations were the Children‘s Medical & Research Foundation of Our Lady‘s Children‘s Hospital, Crumlin, Dublin, Novartis Ireland and Bristol-Myers Squibb Ireland.
By Julie Byrne
The conference targeted survivors and their families and also, specialists, general practitioners, nurses and other health professionals. Registration was free. A total of 111 guests attended; about 70% were survivors and family members.
Speakers were primarily drawn from PanCareSurFup and included Lars Hjorth, Mike Hawkins, Momcilo Jankovic, Elvira van Dalen and Gill Levitt. Other speakers included Alex Brownsdon, Harry Comber, director of the Irish Cancer Registry, Michael Capra, paediatric oncologist at Our Lady‘s Children‘s Hospital, Crumlin, John McCormack, CEO of the Irish Cancer Society, and representatives from CanTeen Ireland, Barretstown Castle and ICCCPO (Gerlind Bode).
The keynote speaker was Irish MEP Nessa Childers, who reminded survivors not to even think about smoking, and to take control of their health.
A survey of those who attended showed a high level of satisfaction with the conference, the speakers and the arrangements. Most rated all elements on the survey as „Excellent“. BRI staff are currently analysing the data from the surveys. A final report will be placed on the conference website – www.ccs2011.ie. The website carries the full programme and the presentations from each speaker . Numerous photos from the event can be viewed on http://www.facebook.com/BoyneResearch, as well as on the conference website.
In Älvsjö, Stockholmsmässan, Stockholm
The Pancaresurfup project will be represented in the session:
Long Term Follow Up in Childhood and Adolescent Cancer
Hall T5 Date: 24-Sep-2011 From: 11:15 To: 13:15
Meet us there!
The Boyne Research Institute, Drogheda, Ireland in association with the Irish Cancer Society will host the first Irish Conference on Survivorship after Cancer during Childhood and Adolescence.
This 1-day conference will take place in the Croke Park Conference Centre, Dublin, on Saturday, November 26th, 2011.
Registration opens on 1 September, 2011. For more information visit www.ccs2011.ie.