PanCareSurFup Bulletin #6

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 PanCareSurFup Bulletin

Sixth Issue

Download PanCareSurFup Bulletin # 6

image004The project’s dissemination team this month interviews Ms. Aimilia Tsirou,  founder of ‘Kyttaro’ – the Greek Association of Childhood and Adolescence Cancer Survivors – and partner in PanCareSurFup.

 

 

 

 

 

 

 

Please widely disseminate to interested colleagues.

 

Should you have any comments on the PanCareSurFup Bulletin, do not hesitate to contact office<at>siope.eu (please replace <at> with @).

 

PanCareSurFup Bulletin #5

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 PanCareSurFup Bulletin

Fifth Issue

Download #5 PanCareSurFup Bulletin March 2014

image004The project’s dissemination team this month interviews the leader of Work Package 3 ‘Cardiac disease: cohort and nested case control study’, Prof. Leontien Kremer from the Emma Children’s Hospital in Amsterdam (The Netherlands).

We also provide many updates on the most recent and interesting events and activities organised by project partners.

 

 

 

Please widely disseminate to interested colleagues.

 

Should you have any comments on the PanCareSurFup Bulletin, do not hesitate to contact office<at>siope.eu (please replace <at> with @).

 

PanCareSurFup Bulletin #4

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PanCareSurFup Bulletin

  Fourth Issue

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the 4th Issue of the PanCareSurFup Bulletin

We are delighted to present to you the fourth Bulletin of PanCareSurFup.

In this issue we are interviewing Dr. Desirée Grabow and Dr. Peter Kaatsch from the University of Mainz (Germany), Leader of PanCareSurFup Work Package 1.

We also provide many updates on the most recent and interesting events and activities organised by project partners.

Please widely disseminate to interested colleagues.

PancareSurFup Bulletin #3

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PanCareSurFup Bulletin

Fourth Issue

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the 3rd Issue of the PanCareSurFup Bulletin

We are delighted to present to you the third Bulletin of PanCareSurFup.

In this issue we are interviewing Dr. Rod Skinner from the University of Newcastle (UK), Leader of PanCareSurFup Work Package 6 on Guidelines, long-term follow-up and transition.

We also provide many updates on the most recent and interesting events and activities organised by project partners.

Please widely disseminate to interested colleagues.

PanCareSurFup bulletin #2

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PanCareSurFup Bulletin

 Second Issue

 

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the 2nd Issue of the PanCareSurFup Bulletin

 We are delighted to present to you the second Bulletin of PanCareSurFup.

In this issue we are interviewing Professor Mike Hawkins, Leader of Work Package 4 and Director of the Centre for Childhood Cancer Survivors Studies at the University of Birmingham, UK.
We also provide many updates on the most recent and interesting events and activities organised by project partners.

Please widely disseminate to interested colleagues.

PanCareSurFup Bulletin: Updates from project partners, 1st Issue

 

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PanCareSurFup Bulletin

First Issue

 

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Download HERE

the 1st Issue of the PanCareSurFup Bulletin

 

 

We are delighted to present to you the first regular bulletin of PanCareSurFup.

 

In this first edition of the project’s Bulletin, the dissemination team interviews the Project Coordinator, Dr. Lars Hjorth from Lund University in Sweden.

We also provide a few updates on the most recent and interesting events and activities organised by project partners.

 

Please widely disseminate to interested colleagues.

 

 

ENCCA Interview with Riccardo Haupt and Lars Hjorth on how to improve the lives of long-term survivors

  • Riccardo Haupt and Lars Hjorth: Improving the lives of long-term survivors Enhancing quality-of-life of the increasing number of survivors of childhood and
    adolescent cancer is one of the main goals of ENCCA and a related EU-funded
    project, PanCareSurFup. A particular advantage of both ENCCA and
    PanCareSurFup is that as rare cancers are the focus, the added-value of networking and sharing information and resources is a given. Many of the partners and experts are already work together and this ensures greater efficiency and success for these two interlinked projects. However, many of the new features of both projects have just started, such as the ‘survivorship passport’ and sustaining these initiatives in the long-term is a must.
    The project Oncovideos – Developing Vocational Skills in Oncology through e-Learning, in coordination with ECCO, is a precious cross-discipline online educational resource for European young oncologists looking for a practice oriented online training.

For child cancer survivors, treatment comes at a cost (CBS News)

There are almost 400,000 survivors of childhood cancer in the United States and most are expected to live until adulthood. But toxic treatment comes with a price, including serious medical problems for most patients years down the road. Now the most comprehensive study of its kind has found that many problems go undetected.

At age 7, Marnie Golden was diagnosed with Non-Hodgkins lymphoma.

Listen to the interview and read article here: http://www.cbsnews.com/8301-18563_162-57589497/for-child-cancer-survivors-tr

Meet us at ECCO17 – ESMO38 – ESTRO32

The 17th ECCO – 38th ESMO – 32nd ESTRO European Cancer Congress, Amsterdam, 27 September – 1 October 2013, will once again combine the united efforts of all partner organisations to continue positioning multidisciplinarity as the way forward to best improve the prevention, diagnosis, treatment and care of cancer patients. The recognised multidisciplinary setting of the Congress will provide ideal surroundings for participants to leverage knowledge, promote education and build awareness about oncology – placing the patient at the heart of all our efforts and discussions.

Read more at: www.ecco-org.eu/

Paediatric Oncology for Cancer Registries Training course

IARC, Lyon, France

25–29 November 2013

Increasingly, there is a need to use clinically relevant information in population-based research. This development increases the usefulness of both clinical and population-based resources and provides the basis for making appropriate policy decisions and contributing to etiological and clinical research. The collection of additional data items with clinical relevance in population-based cancer registries requires well-defined standards and additional resources, in terms of both personnel and expertise.
With the aim of building expertise, Paediatric Oncology for Cancer Registries is a unique course, organized by the International Agency for Research on Cancer (IARC) in the framework of the European Network for Cancer Research in Children and Adolescents (ENCCA), a Network of Excellence funded by the European Commission in FP7.

Aims of the course

The course aims to strengthen knowledge of epidemiology, biology, clinical practice, clinical research, survivorship, and ethical issues in paediatric oncology. The course will provide insight into clinical practice and develop understanding of linkage of clinical data with population-based cancer registries. Upon completion of the course, the participants will be able to initiate the collection of highly specific data items, understand their meaning, and apply the relevant quality control to these data, thus actively contributing to the relevant international studies.

Target audience

The course is designed for the staff of the European Network of Cancer Registries (ENCR) member registries, including research directors, epidemiologists, physicians, pathologists, statisticians, and registrars. A basic knowledge of cancer registration techniques, data collection, classification, and coding is assumed. Fluency in English is also required. Up to 40 participants will be admitted to the course.
Application
There is no registration fee, but participants are expected to cover their own travel and subsistence expenses. Interested candidates should submit an application form (available online) before 28 June 2013. The selected candidates will be informed by 31 July 2013.

Further information

IARC, 150 cours Albert Thomas, 69372 Lyon Cedex 08, France
E-mail: ccs@iarc.fr
http://www.iarc.fr/en/education-training/ENCCAcourse/

 

Download leaflet for the course here (pdf)